busy time in perth. we fortunately got the contract to plant everlastings at the perth international airport. i placed this ludacrist quote and got it! we were finished in 5 hours, not bad money for short work. mind you, that doesn't include our time that we still have to go up and back to perth to do both the pest, and the second dose of fertiliser. boy, i hope it looks fantastic!
i'm not commenting on golf today, because it is the same as, same as.
can't remember what i have been doing.
tired, need shower, need bed.
chow.
Wednesday, July 16, 2008
Sunday, July 6, 2008
shopping
bought some wonderful new clothes. alot of red. match my shoes. when i went to the tysabri appointment, i showed all the nurses. one of the nurses wanted to have my shoes!
wish i was still in perth at the sales. didn't nearly have enough time to do it properly, and there were so many wonderful sales on.
caught up with miff and eyes.
went to a show in kojonup yesterday, which was great, but sometimes boring. otherwise would have stayed in perth for the monday sales.
bugger.
too cold in this office, bye for now.
wish i was still in perth at the sales. didn't nearly have enough time to do it properly, and there were so many wonderful sales on.
caught up with miff and eyes.
went to a show in kojonup yesterday, which was great, but sometimes boring. otherwise would have stayed in perth for the monday sales.
bugger.
too cold in this office, bye for now.
Ratin scale blues
bugger. my rating of ms is no good. i was thinking 7 plus is great, but going by my writing in blog on the 7th feb 'inclement perceptions' it is pretty crap.
check it out:
claire said dr.carroll was put on the spot when she asked what scale would he rate her, in the big picture of ms. it was out of ten; one being fine, and ten in a wheelchair. this was after seeing her mri and doing the usual tests, like he does with me. her mri has less lesions that mine, but the axons are dead, creating 'black holes', whereas mine are white and active. which is better, which is worse.
only time will tell.
anyway it was a five. she got a five. i would be happy with that. i am going to put him on the spot and ask him next time what score i would get. he knows i know claire, so that would be difficult to get his real thoughts. really, he would have no option but to rate me parallel to claire. interesting.
i know i would be worse, but sometimes that is just an inclement perception.
bugger. he always goes against my grain. he should've told me five.
may be he thought that 10 was the best. i'll have to live in hope.
doesn't really matter i guess.
can't wait for the federer and nadal match at 9.30. an hour to wait. what am i going to do???
clean the house.
chow.
check it out:
claire said dr.carroll was put on the spot when she asked what scale would he rate her, in the big picture of ms. it was out of ten; one being fine, and ten in a wheelchair. this was after seeing her mri and doing the usual tests, like he does with me. her mri has less lesions that mine, but the axons are dead, creating 'black holes', whereas mine are white and active. which is better, which is worse.
only time will tell.
anyway it was a five. she got a five. i would be happy with that. i am going to put him on the spot and ask him next time what score i would get. he knows i know claire, so that would be difficult to get his real thoughts. really, he would have no option but to rate me parallel to claire. interesting.
i know i would be worse, but sometimes that is just an inclement perception.
bugger. he always goes against my grain. he should've told me five.
may be he thought that 10 was the best. i'll have to live in hope.
doesn't really matter i guess.
can't wait for the federer and nadal match at 9.30. an hour to wait. what am i going to do???
clean the house.
chow.
7 plus out of ten
the day i had been waiting for has arrived.
elation, i am so pleased, because for the first time i left his office without tears!
my scan showed no new lesions for once, since the treatment! woopydoo!
i had actually improved in my physical assessments! how good is that!
comments of dr. carroll;
* that i have a lot of brain injury for surprisingly few symptoms
* lesion scars could start damaging my brain tissue, so i have to go on these 'mino' pills, for kids with bad acne, to reduce the inflammation in my brain.
* i have to go off the tysabri for a short time (2 months) to let my brain 'flush', in case i get that pml brain cancer.
* he asked if my bracelets were from 'Tiffany's'
* my left eye was bad in seeing things
* my right leg was worse than my left
* i am a 7 plus out of ten, judging by Claire's rating scale
not sure what that 7 ++ meant - was it that one was the best, or one was the worst???
elation, i am so pleased, because for the first time i left his office without tears!
my scan showed no new lesions for once, since the treatment! woopydoo!
i had actually improved in my physical assessments! how good is that!
comments of dr. carroll;
* that i have a lot of brain injury for surprisingly few symptoms
* lesion scars could start damaging my brain tissue, so i have to go on these 'mino' pills, for kids with bad acne, to reduce the inflammation in my brain.
* i have to go off the tysabri for a short time (2 months) to let my brain 'flush', in case i get that pml brain cancer.
* he asked if my bracelets were from 'Tiffany's'
* my left eye was bad in seeing things
* my right leg was worse than my left
* i am a 7 plus out of ten, judging by Claire's rating scale
not sure what that 7 ++ meant - was it that one was the best, or one was the worst???
clausterphobic nightmare
had my mri scan on friday, which i'd forgotten was such a tragic experience. 75 minute, not able to move, and the worst nightmare was being unable to see what was happening to my arm, except i could feel there was a sharp needle prick, then back to the scan again. i was very nervous that night to hear the results of the scan with dr.carroll the next mnorning.
what would happen if they were bad?
there is nothing else for me, what then?
what would happen if they were bad?
there is nothing else for me, what then?
Wednesday, June 25, 2008
plummet
missed golf today. felt crappy this morning with a cold or something. spent the day getting a few things done around here.
last night at 10pm i remembered i had to bake a cake for lucinda's school teddy bear picnic. didn't get to bed until 11.30 in the end.
today she took the cake to school, and a teddy. i asked her how the cake was and she looked at me and said no-one liked your cake mummy. kick in the guts. it was even a fattening cake, not one of my recipes. admittedly, it did have a slight tinge of burn on the edge.
don't have to do the tv media thing anymore, because they don't want to upset the companies who produce the alternative drugs. oh well. that's good, don't have to travel to perth for one day then.
tired now. still have to get kids to bed, read a book, and teeth cleaned.
my shares plummeted today. my four speculative ones. can't win. the money should be sitting in the lounge room and be watched.
last night at 10pm i remembered i had to bake a cake for lucinda's school teddy bear picnic. didn't get to bed until 11.30 in the end.
today she took the cake to school, and a teddy. i asked her how the cake was and she looked at me and said no-one liked your cake mummy. kick in the guts. it was even a fattening cake, not one of my recipes. admittedly, it did have a slight tinge of burn on the edge.
don't have to do the tv media thing anymore, because they don't want to upset the companies who produce the alternative drugs. oh well. that's good, don't have to travel to perth for one day then.
tired now. still have to get kids to bed, read a book, and teeth cleaned.
my shares plummeted today. my four speculative ones. can't win. the money should be sitting in the lounge room and be watched.
Tuesday, June 24, 2008
weekend away
Crap day at golf last week - in terms of the way i played, not the weather. going to give it a miss tomorrow as i need to stay home.
sb's birthday today - sent across a groovy present, tomorrow.
weekend at mr for a 21st - great night. we stayed at an apartment where L nearly wiped her chest off on a shower door, poor little girl.
flat tyre on way down, had to wait in BB for 2-3 hours for a spare tyre; in which case we didn't get to mr until 11.30!
teaching at schools is full-on, nearly finished though.
talked at probus club yesterday about my ms, and i was 'inspiring'.
have to do a tv conference on 1st july for the release of tysabri to patients - bit scary!
too tired. not sleeping. still up cooking cakes for luc's school tomorrow. tired. must go to bed, or at least make it as i am tired. have i already said i'm tired?
chow
sb's birthday today - sent across a groovy present, tomorrow.
weekend at mr for a 21st - great night. we stayed at an apartment where L nearly wiped her chest off on a shower door, poor little girl.
flat tyre on way down, had to wait in BB for 2-3 hours for a spare tyre; in which case we didn't get to mr until 11.30!
teaching at schools is full-on, nearly finished though.
talked at probus club yesterday about my ms, and i was 'inspiring'.
have to do a tv conference on 1st july for the release of tysabri to patients - bit scary!
too tired. not sleeping. still up cooking cakes for luc's school tomorrow. tired. must go to bed, or at least make it as i am tired. have i already said i'm tired?
chow
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